Running for Rare® Team

Through Running for Rare, NORD’s signature charity running program, runners join together with community partners to raise awareness for rare diseases while fundraising. This special team is made up of passionate and committed individuals seeking to make a meaningful difference for the rare disease community. The funds raised by runners will help NORD’s mission to drive public policy, accelerate research and improve care for people living with rare diseases.

The Rare Community Partner program is what makes this team so special. Each runner is paired with a partner (patient, advocate, or other) and builds a relationship with him or her throughout their training leading up to race day. This is the foundation for inspiration as each runner trains throughout the year to run, walk, swim, or bike their way to the finish line. This program also gives each partner a platform to tell their story, raise awareness, find support and connect with those going through similar challenges.

The team is looking for patients and families who are interested in working together to make a difference on behalf of the over 10,000 rare diseases and the 30 million Americans impacted by them.

Interested in learning more? Contact us!

Get Involved

Want to get involved in the Running for Rare Program? Whether you’re looking to donate, sponsor, run, walk, volunteer, or become a rare community partner, we’ve got something for everyone!

Apply to Run

Discover events in collaboration with NORD and seize the opportunity to become a runner! Embark on a journey to run and raise funds for individuals affected by rare diseases.

Apply Now

Become a Corporate Sponsor

Sponsoring our programs contributes to covering the costs of race bibs for our signature events, team uniforms, team dinners, and promotional materials for each participant.

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Become a Community Partner

Join the community of local backers for one of our NORD runners at one of our premier partner events. Raise money for those impacted by rare disease by supporting one of our runners.

Get Started