Category: Boston Marathon

He has 8 heart conditions. She has a rare cancer. Together they’re running the Boston marathon. Little Tessa Booth has been an inspiration to Fort McMurray runner Blake Crossley. Blake Crossley, left, and Tessa Booth, right. The Fort McMurray girl has endured several surgeries and weeks of chemotherapy after being diagnosed with Plural-pulmonary Blastoma or […]

Posted on April 15, 2017 by Rachel Field I write this on along a car ride to an out of town wedding midday after my first double-digit run. I reached 10 miles this morning. It was a beautiful morning in NC/SC. I say this because we live right on the border so I’m always crossing the state line […]

posted on April 21, 2016 by Sarah Yang A lot of us in the Rare Disease world refer to the ups and downs of the diagnosis (or hunt for a diagnosis) as being a marathon. This weekend, I discovered that our life is far more than just a marathon… 14 weeks ago I took on the task […]

posted on April 21, 2016 by Kyriakos Economides The 2016 Boston Marathon was pure misery: My feet hurt, my knees hurt, and with the gels I was taking during the run, my reflux was acting up, so my chest hurt and I felt nauseated for almost the entire race.  My training was derailed once by the flu and […]

Posted on March 22, 2016 by Martha Staples I am so honored and excited to be running in the 2016 Boston Marathon to raise money for NORD. My patient partner this year is Sarah who is diagnosed with fibromuscular dysplasia. As we’ve gotten to know each other, I’ve been inspired by her strength, resilience, and positive attitude. February 29 was […]

Posted on January 19, 2016 by Sarah Yang There could be no better day than today to introduce myself as part of the Running4Rare Boston team. But, before I tell you the importance of this date, I’ll tell you a bit more about myself. My name is Sarah, and I’m a mom of three amazing children. I […]