Category: Satellite Races

Posted on April 27, 2017 by Brittany Hoffmann With a little over a week to go (9 days to be exact, but who’s counting) I ask myself if I really think I can do this again. Having no experience running (and very little training) I ran the Hartford Half Marathon last October. I was flying high until about Mile 6 when it […]

Posted on April 23, 2017 by Elke Phillips It’s two weeks until the Providence Half Marathon.  I’m so excited to be participating as a member of the Running for Rare team.  I’ve definitely been procrastinating on this blogpost but only because I’ve never blogged before and am not really sure what to write about.  So, I thought I […]

Posted on April 7, 2017 by Rachel Field     I have a lot of love and passion for the rare disease community every day,  but especially on days like today, since we went to my daughter’s genetics and metabolism clinic st UNC.  Annabelle is 19 months old exactly today and she has PKU.  A brief description on PKU for […]

Posted on October 9, 2016 by Sarah Dubuc     About two months ago my childhood friend Emily asked me if I’d be interested in running the Hartford Half with Running for Rare. I knew I could do the running part, but was nervous about the partner part. I asked myself selfish questions like, What if we don’t […]

Posted on October 7, 2016 by Noah Victoria   My name is Noah Victoria I am 19 years old I was diagnosed with Abetalipoproteinemia, which is a rare metabolic disorder. This was my second year participating in Running for Rare Diseases as a patient partner. I must start off thanking my mom for showing me this wonderful program. […]

Posted on March 08, 2016 by Emily Burke Last Monday, I participated in the Sanofi Genzyme Running for Rare Disease Day Relay. I ran from my Westborough, MA office building to the Framingham site. The run was 6.9 miles; the longest run of my training for the May 1st Providence Half Marathon so far. In the past […]