Ways to Get Involved


When you join the Running for Rare Team, you are joining a group of individuals who are passionate and committed to an important cause.  This grassroots team of 4 grew to more than 150 runners and, raising over $3,000,000. over the last 15 years.  As any past team member will tell you, being part of this team is a unique, life-changing experience.

The team is composed of dedicated runners from around the world who will not only spend their personal time training for the marathons, but also host numerous events to raise funds and engage people in the cause.

We are currently accepting applications from those interested in participating in one of our signature marathon charity teams and the NORD Running for Rare…Anywhere! program.  Please fill out an application using the link below and we will be in touch!

Rare Community Partners

What makes this charity team so unique is the Rare Community Partner program. Each runner is paired with a partner (patient, family, advocate, or other) and builds a relationship with him or her throughout their training and marathon race.  This is the foundation for inspiration as the runners train throughout the year to run 13.1 or 26.2 miles!  The partnerships are much more than symbolic, they are the beating heart of the team, and the RARE Community Partners (RARE Partners) are as much members of the team as the runners.

This program also gives each partner a platform to tell their story, raise awareness, find support and connect with those going through similar challenges. The team is looking for patients and families who are interested in working together to make a difference on behalf of the more than 10,000 diseases and the 30 million Americans impacted by them.

Join the Cheer Section

Come and be part of the electrifying energy in the cheer section at one of our race events! As a community member in the cheer section, you’ll have the incredible opportunity to motivate and support our NORD runners as they push through every mile with determination and strength. Your cheers, applause, and words of encouragement will be the wind beneath their wings, propelling them forward towards the finish line.

This is more than just cheering; it’s about being part of a community that stands together for a cause that matters. Your presence will not only uplift our runners but also spread awareness and solidarity for those affected by rare diseases. So, bring your loudest cheers, your most colorful signs, and your unwavering spirit to our next race event. Join us in the cheer section and be a beacon of hope and support for our amazing NORD runners!