TCS New York City Marathon - November 1, 2026
Meet the inspiring NORD® Running for Rare® team as they take on the TCS New York City Marathon to raise awareness and critical funds for the more than 30 million Americans living with rare diseases.
Each runner is paired with a Rare Community Partner, creating meaningful connections between athletes and members of the rare disease community.
Learn more about our runners and their stories, donate to support their journey, or join us along the course at one of our city cheer squad sections!
Together, we can run for rare and show the rare disease community that they are never running alone.
| Name | Disease(s) | Community Partner | Learn More | |
![]() | Amanda Bernstein | Pseudomyxoma Peritonei (PMP), a rare cancer | My Dad | Support Amanda |
| Maeve Brin | EDS | K | Support Maeve |
| Teigen Christiansen | Julieta | Support Teigen | |
![]() | Sharon Cotnam | Support Sharon | ||
![]() | Austin Dodd | Support Austin | ||
| Victoria Ferdinandi | ITP | Douglas | Support Victoria |
| Jax Gardner | Corticobasal Ganglionic Degeneration (CBGD) | Sarah | Support Jax |
![]() | Shannon Jones | Support Shannon | ||
![]() | Kellie Jones- Bowles | PKU | Theo | Support Kellie |
| Bridget Joyce | Rothman Thomson Syndrome | Shauna | Support Bridget |
| Benjamin Kany | Lynch Syndrome | Lori | Support Benjamin |
| Sam Klingenberg | Menkes Disease | Evan | Support Sam |
![]() | Steven Koppell | Support Steven | ||
| Julia Maderia | EDS | Jillian | Support Julia |
| Abigail Maderia | Pompe Disease | Shaylee | Support Abigail |
| Sophie Manning | Support Sophie | ||
| Janaiah McClure | FAP | Chris | Support Janaiah |
![]() | Mimi Novak | CRPS, Dystonia | Keating | Support Mimi |
| Amanda Pahl | Lily E. | Support Amanda | |
| Lauren Parnell | Support Lauren | ||
![]() | Natalia Portkyo | Lira | Support Natalia | |
| Pamela Price | Bechet's | Kassie | Support Pamela |
| Joseph Schmidt | Support Joseph | ||
| Kaitlyn Smolich | CLN1disease | Charlie | Support Kaitlyn |
| Brittney Thompson | Morqious Syndrome | Robert | Support Brittney |
