Boston Marathon - April 20, 2026

NameDisease(s)Community PartnerLearn More
Alecia FifeArthrogryposis Multiplex Congenita, PNHGrandson Anthony and AmandaSupport Alecia
Annie SedoricAcromegaly, Lynch SyndromeLoriSupport Annie
Beck MillerHolt Oram SyndromeSon Cannon and NakishaSupport Beck
Calley ForbesFactorX11 Deficiency, Pompe Disease Mom and ShayleeSupport Calley
Eric RogersCHD2 epileptic encephalopathy, Dystonia, Chiari MalformationJaime, Jess and JulesSupport Eric
Howard HernandezRothman- Thomson SyndromeShaunaSupport Howard
Kate KellyPKU Her sons and TheoSupport Kate
Paul CotnamMPS1- Hurler SyndromeKyleSupport Paul