TCS New York City Marathon - November 1, 2026

Meet the inspiring NORD® Running for Rare® team as they take on the TCS New York City Marathon to raise awareness and critical funds for the more than 30 million Americans living with rare diseases.
Each runner is paired with a Rare Community Partner, creating meaningful connections between athletes and members of the rare disease community.
Learn more about our runners and their stories, donate to support their journey, or join us along the course at one of our city cheer squad sections!
Together, we can run for rare and show the rare disease community that they are never running alone.

NameDisease(s)Community PartnerLearn More
Abigail MaderiaPompe DiseaseShayleeSupport Abigail
Amanda BernsteinPseudomyxoma Peritonei (PMP), a rare cancerKenSupport Amanda
Amanda PahlEDS / intestinal failureLily E.Support Amanda
Austin DoddThanatophoric DysplasiaLucaSupport Austin
Benjamin KanyLynch SyndromeLoriSupport Benjamin
Bridget JoyceRothman Thomson SyndromeShaunaSupport Bridget
Brittney ThompsonMorqious Syndrome RobertSupport Brittney
Janaiah McClureFamilial Adenomatous PolyposisChrisSupport Janaiah
Jason RiddellAcid sphingomyelinase deficiency (ASMD) AnthonySupport Jason
Jax GardnerCorticobasal Ganglionic Degeneration (CBGD)SarahSupport Jax
Joseph SchmidtDyskeratosis congenitaGenevieveSupport Joseph
Julia MaderiaEhlers Danlos Syndrome (EDS)JillianSupport Julia
Kaitlyn SmolichCLN1 disease CharlieSupport Kaitlyn
Kellie Jones-BowlesPhenylketonuria (PKU)TheoSupport Kellie
Kerry ComiskeySupport Kerry
Lauren ParnellComplex Regional Pain Syndrome (CRPS)ElainaSupport Lauren
Maeve BrinEhlers Danlos Syndrome (EDS)KristenSupport Maeve
Mimi NovakComplex Regional Pain Syndrome (CRPS), DystoniaKeatingSupport Mimi
Natalia PortykoHao-Fountain SyndromeLiraSupport Natalia
Pamela PriceBehçet's diseaseKassieSupport Pamela
Sam KlingenbergMenkes DiseaseEvanSupport Sam
Samantha KanyTrecher Collins Syndrome RyanSupport Samantha
Sophie ManningLymphangioleiomyomatosisJennSupport Sophie
Teigen ChristiansenGlycogen Storage Disease Type IaJulietaSupport Teigen
Victoria FerdinandiImmune Thrombocytopenia (ITP)DouglasSupport Victoria