TCS New York City Marathon - November 1, 2026

Meet the inspiring NORD® Running for Rare® team as they take on the TCS New York City Marathon to raise awareness and critical funds for the more than 30 million Americans living with rare diseases.
Each runner is paired with a Rare Community Partner, creating meaningful connections between athletes and members of the rare disease community.
Learn more about our runners and their stories, donate to support their journey, or join us along the course at one of our city cheer squad sections!
Together, we can run for rare and show the rare disease community that they are never running alone.

NameDisease(s)Community PartnerLearn More
PlaceholderAmanda BernsteinPseudomyxoma Peritonei (PMP), a rare cancerMy DadSupport Amanda
Maeve BrinEDS KSupport Maeve
Teigen ChristiansenJulietaSupport Teigen
PlaceholderSharon CotnamSupport Sharon
PlaceholderAustin DoddSupport Austin
Victoria FerdinandiITPDouglasSupport Victoria
Jax GardnerCorticobasal Ganglionic Degeneration (CBGD)SarahSupport Jax
PlaceholderShannon JonesSupport Shannon
PlaceholderKellie Jones- BowlesPKU TheoSupport Kellie
Bridget JoyceRothman Thomson SyndromeShaunaSupport Bridget
Benjamin KanyLynch SyndromeLoriSupport Benjamin
Sam KlingenbergMenkes DiseaseEvanSupport Sam
PlaceholderSteven KoppellSupport Steven
Julia MaderiaEDSJillianSupport Julia
Abigail MaderiaPompe DiseaseShayleeSupport Abigail
Sophie ManningSupport Sophie
Janaiah McClureFAPChrisSupport Janaiah
PlaceholderMimi NovakCRPS, DystoniaKeatingSupport Mimi
Amanda PahlLily E.Support Amanda
Lauren ParnellSupport Lauren
PlaceholderNatalia PortkyoLiraSupport Natalia
Pamela PriceBechet's KassieSupport Pamela
Joseph SchmidtSupport Joseph
Kaitlyn SmolichCLN1disease CharlieSupport Kaitlyn
Brittney ThompsonMorqious Syndrome RobertSupport Brittney