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The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is a patient advocacy organization whose mission is dedicated to individuals with rare diseases and the organizations that serve them. Rare diseases impact 25-30 million Americans. Rare diseases can take 5-7 years to diagnose and less than 10% of them have an FDA-approved treatment.

To maintain programs like the Running for Rare, we rely on the donations of individuals and organizations. Your donation will help offset the overhead costs associated with supporting the team and allow monies raised to go to the NORD/Undiagnosed Diseases Network (UDN) Patient Assistance Program.

Please consider making a donation to the Running for Rare program!

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Sponsorships available! Please contact us for more information.

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